At 21, Chris Calabrese has faced challenges that most people can hardly imagine. Diagnosed with Limb Girdle Muscular Dystrophy (LGMD) in 2016, Chris has had to navigate a world drastically altered by the progressive muscle weakness characteristic of this rare genetic disorder. Despite the physical and emotional pain that accompanies his condition, Chris has found solace and strength in his passion for art, particularly painting, and the unwavering support of his family and girlfriend, Gianna.
From a young age, Chris was a vibrant and active individual, with hockey being his sport of choice. However, as symptoms of LGMD began to manifest, his once energetic lifestyle was replaced by frequent doctor visits and a gradual loss of physical abilities. “It was hard in college living with MD,” Chris recalls. “I would be so scared to leave my room and be looked at.” The emotional toll was significant, leading to bouts of depression and even suicidal thoughts.
Amidst these struggles, Chris discovered the therapeutic power of art. Painting became more than just a hobby; it became a crucial coping mechanism. “Luckily, I have a lot of distractions in my life. I paint a lot and have many hobbies that keep me distracted from my diagnosis,” he shares. Through his art, Chris finds a way to express emotions that words often fail to capture, offering a form of escape from the relentless pain and challenges posed by LGMD.
The importance of a strong support system cannot be overstated in Chris’s journey. His family has been a pillar of strength, with his mother playing a particularly crucial role. “My mother is a warrior and I give her all the credit for putting up with me,” Chris says. Additionally, his girlfriend, Gianna, has provided him with unconditional love and support. “I feel lucky to have my girlfriend Gianna who has been amazing and shows me unconditional love every day,” he notes. This network of support has been instrumental in helping Chris maintain a positive outlook despite his condition.
Mental health awareness is a cause close to Chris’s heart. He emphasizes the need for greater understanding and support for those living with Muscular Dystrophy and other chronic illnesses. “People need to know more about this disease, and there should be more awareness because there’s not too many people that have it,” he stresses. Chris’s journey underscores the importance of addressing mental health alongside physical health, highlighting how crucial it is to have resources and support for dealing with the emotional impacts of chronic illnesses.
Chris’s message is one of hope and resilience. Despite the daily challenges and the uncertainty of his condition, he remains optimistic about the future. “The doctors out there are really taking this diagnosis seriously and are thinking of me every day for when something comes out, so I’m excited for what’s to come,” he says. His experience has taught him valuable lessons about resilience, gratitude, and the power of a positive attitude.
As Chris approaches his 22nd birthday, he reflects on the importance of taking life “minute by minute, second by second.” His story is a powerful reminder that even in the face of life’s toughest obstacles, creativity, support, and a hopeful mindset can make all the difference. Chris Calabrese’s journey with Muscular Dystrophy is not just a tale of struggle but one of triumph, art, and the enduring power of love and support.
Published by: Nelly Chavez
